My life with EDS from childhood until now
About ( mis )diagnoses to EDS
EDS symptoms
Aids for dealing with EDS
Treatments for my EDS symptoms
What’s on my mind
Dies und dass
Dingen om te delen
The underground parking garage is in front of the hospital entrance. First, a tunnel and then two escalators lead me up from the dark basement of our society to the large, open building with so much glass that it seems to radiate light. Big windows and a glass ceiling that are supposed to radiate life,…
Chronic illness and the face of pain I look in the mirror, look at my skin, irritations, and pimples. My hair is sticking out in every direction. I’m looking at myself, but don’t see myself. I avoid looking into my eyes. The eyes, the windows to the soul. A soul hidden by a wall of…
Below an infocard I use that can be downloaded. Please add your own photo and adjust where necessary. ( marked red ). If you need help or something personalised, please let me know. To view on Word desktop
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” Simultaneously I am myself, the child I was, the old man I will be.”
Peter Matthiessen
Living with Ehlers Danlos Syndrome 