My life with EDS from childhood until now
About ( mis )diagnoses to EDS
EDS symptoms
Aids for dealing with EDS
Treatments for my EDS symptoms
What’s on my mind
Dies und dass
Dingen om te delen
A poem Put the newspaper down you’re not reading anyhowjust cry for a while.Leaning against someone’s chestwould help tears come out best,Just try to cry for a while. Many suffer, you never complain Ignoring pain is how you containso cry for a whileComfort yourself in griefis the best you can achieveSo cry for a while…
Weggestoßen, abgestoßenabgetrennt sein, losgetrennt sein.Alles gewollt –alles gegebenDrauf sein –bei dir seinweg sein –allein seinmit mir im Reinen sein© Ricarda Jo. Eidmann*My brain tells me it a hundred times a day. “There is something wrong with you, these thoughts are no good, they are not normal.” I listen, I agree, but I see no way…
The underground parking garage is in front of the hospital entrance. First, a tunnel and then two escalators lead me up from the dark basement of our society to the large, open building with so much glass that it seems to radiate light. Big windows and a glass ceiling that are supposed to radiate life,…
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” Simultaneously I am myself, the child I was, the old man I will be.”
Peter Matthiessen
Living with Ehlers Danlos Syndrome 