Category: Uncategorized

The underground parking garage is in front of the hospital entrance. First, a tunnel and then two escalators lead me up from the dark basement of our society to the large, open building with so much glass that it seems to radiate light. Big windows and a glass ceiling that are supposed to radiate life,…

Chronic illness and the face of pain I look in the mirror, look at my skin, irritations, and pimples. My hair is sticking out in every direction. I’m looking at myself, but don’t see  myself. I avoid looking into my eyes. The eyes, the windows to the soul. A soul hidden by a wall of…

Below an infocard I use that can be downloaded. Please add your own photo and adjust where necessary. ( marked red ). If you need help or something personalised, please let me know. To view on Word desktop

I am preparing in a corner of the swimming pool. I set myself a goal to swim under water to the other side. I calm down my breathing to a level of total relaxation, meditating. I take a small gasp of air but not too much. I dive down with a firm push to the…

Unpopular opinion: being touched as an EDS patients is not pleasant.

I came across a social media post of a young woman who revealed in a light hearted way that she suffered from bedwetteng, or Nocturnal Enuresis, since several years. The amount of hate and comments that ridiculed her was not normal. I understand that social media is a cesspool where everyone can and thinks they…