Please note, this is my personal experience of living with Ehlers Danlos Syndrome, the treatments and path to diagnosis and should therefore not be taken as medical advice. I am aware that some complaints are only indirect EDS symptoms but these also contribute to the overall picture and my experience with the condition, EDS.
Quotes and links are freely available information from the internet and not verified. These, and my experiences, are not intended as an alternative to medical advice.
In my 40th I got promoted and although I Always liked my job, I was Lucky to not have to do physical tough work anymore. But the decline accelerated as I moved less. I gained weight and walking became more difficult. Pain was undenyable nd physical therapy and later rehab therapy followed, I had to use legbrace and could only walk for a limited time.
Hypno therapy made me connect the dots of different symptoms. Quickly HEDS was diagnosed with the Brighton score. EDS specialised clinics are rare and there is a long waiting list. I hope to be called soon. Probably genetical tests will follow. I am not hoping to heal anymmore. I just hope to be able to move better, with less pain.
Living with Ehlers Danlos Syndrome 