Please note, this is my personal experience of living with Ehlers Danlos Syndrome, the treatments and path to diagnosis and should therefore not be taken as medical advice. I am aware that some complaints are only indirect EDS symptoms but these also contribute to the overall picture and my experience with the condition, EDS.
Stiffness may seem like a strange condition for people with hypermobile joints. Yet it was one of my first complaints. Due to a low base tension in my body, I learned from an early age to actively tense my body. This active action is automatically pushed to the background, but my body reminded me again and again when I tripped, fell, went through a joint or overstrained a joint.
This tension can be maintained for a long time, but the joints do not move over each other as they do in a healthy person. This often leads to arthritis or arthritis-like complaints. In a later stage of EDS, the feeling of stiffness also does not go away when relaxing.
Men with EDS often suffer from claw hands and deformed fingers. The neck, lower back and ankles are also often affected and stiff. A joint can be both stiff and unstable and splints and braces can provide relief and help with normal daily activities.
Living with Ehlers Danlos Syndrome 